Hi everyone, we came home on Friday, Joel was a little tired but doing well.  Today he took a nap in the afternoon but when he woke up he wanted to go outside and play.  Balance is still an issue for him and the ground is uneven it makes me nervous watching him pick up [...]

We are at the Children’s Hospital, for a scheduled chemo.  I meant to throw that out there before we left for the hospital but time got away from me. Dave and I brought Joel and Samuel up to the hospital on Wednesday.  Joel is doing well, a little sleepy and slightly grumpy but other than [...]

Just a quick update… Joel did great with his MRI today.  I always worry how he will do with fasting before a procedure but he did fine.  He mentioned that he was hungry and that his tummy growled but other then that he did not complain. Joel receives sedation for his MRI’s he has done [...]

Between emails and comments I’ve had some questions so I thought I would answer them here.  Before I get started I wanted to update from yesterday’s post.  We stayed home while the snow blew and we were cozy as could be.  They were able to fit Joel in for all 3 appointments today, so we [...]

Joel and I headed to the hospital yesterday, it has been an on going battle to get the physio, occupational therapy, and speech therapy that Joel needs. I think we are starting to make a bit of head way. Joel had a reassessment done with speech to make a new referral as he has been [...]