Joel
Thought I would quickly update how things went at the hospital this week. Yesterday Joel was amazing. He had to have a GFR test which tests kidney function. They inject a radioactive substance then over the next 3 hours they draw blood 3 times. So injection at 9am and blood draws at 10am, 11am & 12noon. He was so good about it. He also had a hearing test which he passed.
Some of his chemo meds can effect hearing and kidney function so before each round they test these to be sure they don’t need to adjust doses. I haven’t heard how his GFR was but no news is good news.
Today we went for therapy and it was not as positive as yesterday. The first 5 minutes were fine but when she started to ask Joel to do things which he felt were difficult he dropped to the ground and assumed the fetal position. As we tried to cajole him along the scene went from bad to worse faster than a bullet train. Needless to say that was the end of therapy.
I will try some of the activities he did not want to attempt there here at home. Walking backwards and standing on one foot maybe we can make a game of it.
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5 Comments
Savannah
glad he did well with the tests…maybe you can make a make-shift twister(ish) game for the other things? a smaller mat, and just have him go on one space at a time..but he can't turn around to step if it's behind him, etc..maybe even hannah would want to play 😛
Maryann
Hi Cheryl,Thanks for dropping by Matthew's Puzzle earlier. How old is Joel? I'm really sorry your family is going through this. As you know my son has autism and we have successfully used a lot of alternative treatments for him. Are there resource groups you can talk to about this? I joined a lot of yahoo groups to find out what people were doing to help recover their children and that led me to finding alternative doctors that could help. That led to more info, etc, etc, etc. Can you try that.Lots of blessings to you and your family.Maryann
Brenda
I'm following from MomBloggersClub. I am praying for your family.
Nickie
Hi, I'm a new follower who found you at Mom Bloggers Club. Sounds like it was a really good day. I'll pray for many many more.
Veronica Lee
Prayers and hugs for the family.Hi! Stopping by from MBC. Love your blog.Have a nice day!